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I have crippling ARFID


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#1 sapphona

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Posted 01 August 2020 - 11:15 AM

and I hate it so, so much

apart from diagnose of asperger syndrome, anorexia and depression :'))

I have the impression that ARFID is treated mainly as a childhood disease, which makes me hella insecure

it is mainly due to my sensory problems

I can't stand soft, liquid, greasy and bitter food

Any weirder textures brrrrrrr

I am so anxious about trying new food even in little portions

I literally can vomit in front of everyone for some sudden unfamiliar taste

it makes my social life so bad

I can't even right words

please make my disorder serious

if you have similar problems, please write :<

and sorry for my bad english


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this can't be real


#2 Guest_zoe flynn_*

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Posted 08 August 2020 - 07:40 PM

i don’t have ARFID but my brother does and this is so so valid. this isn’t a child disease. it’s possible to be treated. you don’t have to live like this forever. i know it’s scary but the best thing and really the only thing to do is reach out. i know it’s so so hard, i have anorexia anxiety and depression and i’ve reached out and i can finally start to feel happy again. but i promise your eating disorder is real and valid and i’m so sorry you have to deal with it
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#3 Oh!

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Posted 09 August 2020 - 01:19 AM

I'm pretty sure that I've got ARFID as well? Probably related to my suspected autism (haven't gotten a chance to see a specialist yet but I feel like it's... pretty obvious if you interact with me irl)

My diet is super super restrictive even when I'm not in a restrictive phase of my EDNOS because I have the same issues. Textures, especially. Taste doesn't bother me as much but textures... I feel like I can't eat like 95% of foods and it's depressing tbh. And people always shit on "picky eaters" and it's like bruh I legitimately can't help it I can't put that shit in my mouth it's unbearable


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#4 Pixiedust310

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Posted 24 August 2020 - 04:29 PM

I'm not sure if I have it
But certain textures. I just can't deal with. Especially meats
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#5 VaporwaveGirl

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Posted 24 August 2020 - 08:50 PM

perhaps learning to cook the foods you wish to get better with will help you get familiar with the textures and smells... half of taste IS texture and smell afterall. Remember anything like this requires baby steps, and just trying a single bite of your "fear foods" is an accomplishment! you dont HAVE to like the food... just try it. if you are by yourself, you can even spit it out. perhaps start with similar foods before you try something too outlandish, could be as simple as a same food with a different sauce! maybe if you like a certain sauce, try it on a different food so it tastes familiar and comforts you


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#6 peach dreams

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Posted 24 August 2020 - 08:56 PM

I was treated for ARFID when I was 14! It's typically a disorder that STARTS in childhood, but it is not by any means a childhood disease. When I went to treatment the most recent time, I was with a man who was in his 60s that went to res for his ARFID. You can and should absolutely get help for it. I am so,so sorry that it is such a struggle for you.

Side note- as I said, I also have ARFID. I've literally never known anyone with ARFID that wasn't on the spectrum? I'm guessing they're related more of the time since it mostly has to do with sensory stuff.
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#7 Guest_zyzpz flfww_*

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Posted 27 August 2020 - 02:35 PM

I know it's though. I barely tolerate to see people eating some particular stuff I can't even smell. I don't understand why this happen and sometimes I get excited about going out with friends and take someyhing until I understand I can't eat the food. So I relate and understand... my disorder have always been there, but it changed in time (I made some "progress" and now I can handle food I did not eat in the past -mostly for the smell or colour- but on the other hand new difficulties came up for the density of the food).

Sorry for my bad english too, I'm happy if you and other people want to talk about it.

#8 Guest_baby kaiju_*

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Posted 29 August 2020 - 06:48 PM

I have anorexia b/p but my best friend has ARFID. We’ve been friends for 13 years but since she encountered some physical health problems several years ago she has become very closed off and she was recently diagnosed with ARFID. I’m trying to learn as much as I can about it so that I know what to avoid and hopefully how to help her :,) do you know if there’s a general list of most hated textures/foods/taste/smells or anything?

#9 orthonurse

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Posted 30 August 2020 - 06:48 AM

Hi, I have autism and struggled very badly with ARFID as a kid. I failed to gain weight and at 7 years old I had a six-pack ,despite my lack of physical activity. Very spooky and unfortunate. I would faint if my showers were too warm.

Try to eat more of your safe foods. That is really the most you can do. And then make/try new foods that you would not normally eat, as long as they are cooked with the textures you like. I would only be able to eat really crunchy things, nothing soggy, or straight up pudding. And I hated meat. I would try to eat meat by cutting it up into teeny tiny pieces, mixing it in rice or beans, and shoving it in my mouth, chew chew chew chew chew and swallow no thinking! Pretend it's medicine


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Height: 5'3" / 160 cm

Heighest weight: 143 lbs / 65 kg

Current weight: 136.2 lbs / 62.1 kg

Goal weight: 105 lbs / 47.7 kg

Ultimate goal weight: ♥️ 96.0 lbs / 43.6 kg ♥️

Lowest weight: 97 lbs / 44.1 kg


#10 Snazzy

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Posted 30 August 2020 - 08:35 AM

You are valid and it this disorder sucks. I go through episodes of arfid when I get manic, and even those short spells are complete trash.

 

It is thought of as just "picky eating" which is why it gets associated with children, buts its so much god dam more then that. Its hordendous as valid as any other ed, and you deserve to get all the love and support you need to get help and get better.


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Height: 5'8    SW: 77    CW: 57.1   GW: 50     LW:56


#11 skinn-annd-bonnes

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Posted 02 September 2020 - 11:39 PM

I was treated for ARFID when I was 14! It's typically a disorder that STARTS in childhood, but it is not by any means a childhood disease. When I went to treatment the most recent time, I was with a man who was in his 60s that went to res for his ARFID. You can and should absolutely get help for it. I am so,so sorry that it is such a struggle for you.
Side note- as I said, I also have ARFID. I've literally never known anyone with ARFID that wasn't on the spectrum? I'm guessing they're related more of the time since it mostly has to do with sensory stuff.

I haven’t met anyone with ARFID that’s not on the spectrum either except me, although it runs in my family and I might just have an undiagnosed form lol.
And OP, I know the feeling. When I was diagnosed I felt alone and I have gone through many years of therapies that never made a dent in my food issues. But after less than a year of food therapy, I’m doing so much better. I had fruit for the first time in over a year, and didn’t gag or anything. It might seem hopeless but remember it’s possible and it’s worth it. ❤️
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#12 thingrave

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Posted 08 September 2020 - 11:44 AM

I have ARFID and for all that I know I show no signs of autism or aspergers. It's not exclusive and it's not a childhood disease. I can only eat 19 foods (I counted) and I overreact (get violent even) if someone threatens to or touch me after they have touched any food I despise and havent washed their hands afterwards.

Recovery is probably possible but even though my social life is really badly affected by ARFID, I pretty much got used to it and am too disgusted of other foods to feel that it's worth the effort and discomfort of any form of expositive therapy. I'm alright and just want to be left alone.

Once when I was about 10 I didn't eat for almost a week because thought there was a lot of food variety available, there wasn't any of the 19 food items I can eat. I wasn't even bothered, I just didn't eat and didn't feel like it was that big of a deal though everyone freaked out. Before that my parents always kept telling me "oh but if you were REALLY hungry you'd eat anything", then they stopped. They also used to compare me to other kids that ate everything and it was pretty annoyed, but I haven't changed and I don't think I will 'get better' soon. am 17

what the fuck

ARFID

FULLY RECOVERED FROM OTHER EDs


#13 Maladaptive

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Posted 25 November 2020 - 01:15 PM

and I hate it so, so much
apart from diagnose of asperger syndrome, anorexia and depression :'))
I have the impression that ARFID is treated mainly as a childhood disease, which makes me hella insecure
it is mainly due to my sensory problems
I can't stand soft, liquid, greasy and bitter food
Any weirder textures brrrrrrr
I am so anxious about trying new food even in little portions
I literally can vomit in front of everyone for some sudden unfamiliar taste
it makes my social life so bad
I can't even right words
please make my disorder serious
if you have similar problems, please write :<
and sorry for my bad english

Your English is great! Don't apologize! I'm trying to learn another language (English is the only language I know) and it really takes a lot of bravery to speak/post in a language that is foreign to you. So, not only is your English really great, you're also really courageous for posting in another language. (Sorry for this monologue; language is just something that really interests me!)

That being said! I totally agree with you. Sometimes if I think too hard about "soft" foods, I'll literally feel nauseous and start to gag. It sucks, because I like the smell of some of these food, but the texture is so revolting...

Current BMI: 15.07


Height : 5'4" / 163cm / 1.63m


Highest Weight : 98.8lbs / 44.81kg / 7.1 Stone


Start Weight: 97lbs / 43.99kg / 6.9 Stone


Current Weight : 87.8lbs / 39.83kg / 6.3 Stone


Lowest Weight : 86.8lbs / 39.37kg / 6.2 Stone


Goal Weight : 80lbs / 36.28kg / 5.7 Stone

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