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Anyone here have thyroid problems?


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#1 Madi_444

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Posted 14 October 2021 - 09:42 AM

So I have grave’s disease, and back in july i did RAI to kill my thyroid (not because my thyroid was stubborn, i just enjoyed eating whatever the hell i wanted and not gaining any weight, so i felt ‘recovered’) and now i’m put on levothyroxine because i don’t have a function thyroid anymore. i’ve put on 15 pounds in a month, and i was wondering if this medicine would help me lose that weight? like right now i restrict 800-1000 calories a day, and my weight has not budged AT ALL. oh and i’d love to relate to some people with thyroid disorders, and just have a chat 😊

#2 VampireQueen

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Posted 14 October 2021 - 12:31 PM

I have hashimoto's disease but since I found the right dose for my meds my weightloss goes well. I had trouble losing before... and gained like 20lb when I was first diagnosed.


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#3 philia.

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Posted 14 October 2021 - 01:38 PM

hey, i also have graves (although i only had radiation to destroy it a little, since i was so young at the time of procedure they didnt want to remove it fully) and have found my medicine is making it hard to lose weight too since i got back on it :( theres even been times where i have stopped taking my meds and let it go crazy bahaha, i definitely don’t recommend though- lol

#4 Madi_444

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Posted 14 October 2021 - 01:58 PM

I have hashimoto's disease but since I found the right dose for my meds my weightloss goes well. I had trouble losing before... and gained like 20lb when I was first diagnosed.


Did you ever get severe muscle weakness? My thyroid took a deep dive in the past month and it feels like all my muscles are so weak and achey, despite not being a very active person. Before my graves’ disease got diagnosed, i could eat 1,200-1,800 calories a day w/o exercise and still managed to lose 30 pounds in 4 months, but now? i can barely see the number budge at all!

#5 Madi_444

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Posted 14 October 2021 - 02:00 PM

hey, i also have graves (although i only had radiation to destroy it a little, since i was so young at the time of procedure they didnt want to remove it fully) and have found my medicine is making it hard to lose weight too since i got back on it :( theres even been times where i have stopped taking my meds and let it go crazy bahaha, i definitely don’t recommend though- lol


how old were you when you got your radiation done (if you don’t mind me asking), and even if i could go back in time, i probably wouldn’t have changed a thing, except i probably would’ve started overdosing on my methimazole a week prior to getting blood drawn, just so i could use my graves to help me lose weight 😂

#6 breakable_doll

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Posted 14 October 2021 - 02:34 PM

I’m severely hyperthyroid but after further testing it seems it isn’t from Graves or any other autoimmune disorder. They want to do a scan and then they’ll want to do RAI or surgery. I don’t plan to do either treatment, and I don’t (and will never) take my prescribed meds. Kind of hard to justify this choice to my family and health care providers, but that’s just where I’m at with it, for better or worse.


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#7 Madi_444

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Posted 14 October 2021 - 03:05 PM

I’m severely hyperthyroid but after further testing it seems it isn’t from Graves or any other autoimmune disorder. They want to do a scan and then they’ll want to do RAI or surgery. I don’t plan to do either treatment, and I don’t (and will never) take my prescribed meds. Kind of hard to justify this choice to my family and health care providers, but that’s just where I’m at with it, for better or worse.


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I don’t blame you. If i was an adult when all this happened, I would’ve just taken the diagnosis and ran with it. Yeah, it comes with lots of side effects, but the way our brains work, the weight loss outweighs everything. I don’t think they can force you to get treatment for your thyroid, unless you have cancer? I had my graves’ disease and didn’t take my meds for 3 years, and i’ve never showed any signs of any cancer or non cancerous tumors/lumps. And if you aren’t able to afford it, i’m sure that’s even more reason not to do it!

#8 Madi_444

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Posted 14 October 2021 - 03:06 PM

I’m severely hyperthyroid but after further testing it seems it isn’t from Graves or any other autoimmune disorder. They want to do a scan and then they’ll want to do RAI or surgery. I don’t plan to do either treatment, and I don’t (and will never) take my prescribed meds. Kind of hard to justify this choice to my family and health care providers, but that’s just where I’m at with it, for better or worse.


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And i send virtual hugs to you and wish you the best, it sucks we choose this over a normal life <3

#9 PaperThinGangster

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Posted 14 October 2021 - 03:32 PM

Damn you got graves disease that sucks!! I knew a woman that had grave's and she had to have surgery to remove her thyroid.. 

I have hyperthyroid that turned to hypo... had it for 16 years now. I am 30. Sometimes, these conditions can be noticed early.. I'm not sure if this is true for grave's. :(

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#10 TinyCray

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Posted 14 October 2021 - 04:18 PM

Years ago got some tests done and they told me that I had some thyroid issues, but they weren’t bad enough to try to seek treatment for it.
Perhaps nowadays it’s even worse, but I won’t get to know.

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#11 philia.

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Posted 14 October 2021 - 10:43 PM

how old were you when you got your radiation done (if you don’t mind me asking), and even if i could go back in time, i probably wouldn’t have changed a thing, except i probably would’ve started overdosing on my methimazole a week prior to getting blood drawn, just so i could use my graves to help me lose weight 😂



#12 philia.

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Posted 14 October 2021 - 10:48 PM

how old were you when you got your radiation done (if you don’t mind me asking), and even if i could go back in time, i probably wouldn’t have changed a thing, except i probably would’ve started overdosing on my methimazole a week prior to getting blood drawn, just so i could use my graves to help me lose weight 😂


i was like… 7? i think.

but eek. definitely have felt that before lmao

#13 mappeol

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Posted 15 October 2021 - 12:07 AM

i have issues w my thyroid on and off and its related to my diet most likely. When i lived on purely protein, no carbs or fat i had a very underactive thyroid. I read its common for thyroid function to drop if you do keto or low carbs bc carbs are needed to produce t4. Idk about fats but fats are essential for hormones. I also had a very overactive thyroid for awhile and i have no idea why. On my latest blood test my thyroid was normal.

 

I remember feeling awful when my thyroid was underactive though - freezing, fatigue etc


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#14 beyond.the.boundary

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Posted 15 October 2021 - 02:10 PM

So I have grave’s disease, and back in july i did RAI to kill my thyroid (not because my thyroid was stubborn, i just enjoyed eating whatever the hell i wanted and not gaining any weight, so i felt ‘recovered’) and now i’m put on levothyroxine because i don’t have a function thyroid anymore. i’ve put on 15 pounds in a month, and i was wondering if this medicine would help me lose that weight? like right now i restrict 800-1000 calories a day, and my weight has not budged AT ALL. oh and i’d love to relate to some people with thyroid disorders, and just have a chat

 

I have had hypothyroidism my whole life, and I am also on levothyroxine. It is meant to replace the thyroid hormone that is not being produced by the body. As long as you are on the right dose, you should not have any trouble losing weight. However, it might take a bit of time for them to figure out the right dose for you. That may be the problem. I'm not an expert though, just speculating.


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#15 Crowe

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Posted 15 October 2021 - 03:14 PM

Yes, I've been having thyroid hormone problems for a while, it made my legs swell up a bunch and they're still a bit swollen and sensitive :( I got medication, thankfully, and I have pillows arranged in a way that my legs are higher than my pelvis so that the fluid gets processed and such, but it's still a pain, since it's underactive. I'm going to get my blood tested after the weekend so hopefully I can see if I need a higher dose or not so that I can have less trouble with swelling and pain and be able to lose weight. I feel so selfish for wanting to get my thyroid fixed just to lose weight even though my ED triggered those issues in the first place, to be honest.


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#16 Kazue

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Posted 16 October 2021 - 01:33 PM

I have Graves disease. Its onset correlated with a recovery from anorexia/ednos. Since then, I had several courses of thyroid blockers and when those stopped working, I had my thyroid completely removed. Radioiodine therapy was never an option, because I was breastfeeding and considering to have another baby

So I'm on thyroxine and have no problems loosing weight. But my dosage is quite high, almost borderline hyperthyroid, so that "helps". Need it for breastfeeding my second child or the milk will dry up if there are not enough thyroid hormones.

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#17 Sketch.Head

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Posted 16 October 2021 - 02:15 PM

I might. It runs in my family and my mom has some. Ive been having alot of symptoms of thyroid issues so im gonna have to get it checked out


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